Lyme has become the center of my universe, as my wife (apl4eris, another EA poster) has been diagnosed by 2 specialists with the late stage/chronic type. She has been housebound for over 2 years. We have no idea when she got it, but we figure at least 12-15 years ago, based on symptom tracking. Here are the facts:
- Lyme has been found not only in deer ticks, but other ticks, fleas, and mosquitoes. Transmission to humans has not been directly observed from all of these (only the deer and other ticks), but is suspected.
- The longer the tick is attached, the more spirochetes are transferred. if the tick is smashed or the head torn off, it accelerates this process.
- Other infectious agents commonly transferred are babesia(parasite), bartonella, rocky mountain spotted fever, and a whole soup of other virii and mycoplasma/bacteria. You aren't only up against the borrelia (lyme).
- It can only take 24-48 hours to invade the central nervous system (lab tests - time not directly observed in humans). Once there, many antibiotics cannot reach it, as only a few will enter nonvascular tissues. It can lay dormant for years until you get beat down and it can gain a foothold.
- Lyme spirochetes can enter a cyst form to weather lesser antibiotics, and emerge when the coast is clear.
video of this process
- Lyme spirochetes can enter an L-form where they shed their cell walls and hide inside your own cells, which can cause it to appear as an autoimmune disorder (Lupus, Rheumatoid Arthritis, etc).
- There are very few Lyme literate doctors. They are being persecuted by insurance companies leaning on state medical boards for providing long term antibiotic therapy, even though the national institutes of health and the CDC acknowledge this protocol. The trouble this causes is that not many docs know how to beat this.
- The tests SUCK. There are over 300 known strains of borrelia, and the ELISA and Western Blot only account for less than 10. The most reliable test is knowing you have been bitten, and have symptoms. If you have a rash, it is proof.
- The costs now will be well worth it relative to the long term treatment if you do not catch it early. The sooner it is treated, the better chance you have.
Run quickly from any doc who does not know what to do when they see the rash. We went through 5 years of misdiagnosis and the treatments for those illnesses only allowed the lyme to take a greater foothold. I would be more than happy to help connect you with more resources, or talk about doctors or meds. One of the best ways to get up to speed is to read through the
ILADS materials here.
The other posters were extremely fortunate to get out of this relatively easily, and I certainly hope you do too - you should, with proper diagnosis and treatment. You are already lucky to show symptoms. The rash only shows up about 30% of the time in Lyme patients. Most never know how long they have been infected before it takes a bad turn.
So yeah - nothing to fuck around with.
Good luck. Let me know if we can help.