skinny honkie wrote:Firmly on topic.
I'm a solo dad, and parenthood is by far the most incredible thing that will ever happen to me, or anyone else who involves themselves in the process.
I was a pretty young dad at 22, and my partner was a pretty hardcore feminist and career woman, and I became a housedad. It was awesome, better than your best band playing your best gig after your best album.
Just prior to his first birthday my son was diagnosed with a unique congenital heart defect, which was operated on to treat as best as possible. The image of my most loved with his chest open like a roast chicken on the operating table will be with me until I die.
Anyway, he grew after the op, and started to develop - he proved very bright, very cheeky, and very caring and considerate. He's an awesome boy.
At the age of four he was subsequently diagnosed with a very rare variant of an already rare disease called Focal Segmented Glolumerlosclerosis, which is a kidney disease, and prevents the kidney from filtering the blood properly.
Here's the rub: His heart cannot cope with high cholesterol/blood impurity in general, and his kidneys cannot do a particularly good job of filtering his blood. Put 2 + 2 together. Currently his cholesterol level is around 10, and this is whilst on a cocktail of drugs to deal with the condition (statins, anti-cholestrol agents, ABs).
His life expectancy is limited. I have been told that he will be considered a medical success if he lives to see his 20th birthday.
He is academically and creatively gifted, and has a 10ft-tall personality - he plays the drums, paints, draws, flirts like a gigolo - he is beautiful, thoughtful, and a wonderful human being. Every day with him is my greatest reward in the world.
I love him more than life, and he does not deserve the circumstances on his plate.

skinny honkie wrote:Firmly on topic.
I'm a solo dad, and parenthood is by far the most incredible thing that will ever happen to me, or anyone else who involves themselves in the process.
I was a pretty young dad at 22, and my partner was a pretty hardcore feminist and career woman, and I became a housedad. It was awesome, better than your best band playing your best gig after your best album.
Just prior to his first birthday my son was diagnosed with a unique congenital heart defect, which was operated on to treat as best as possible. The image of my most loved with his chest open like a roast chicken on the operating table will be with me until I die.
Anyway, he grew after the op, and started to develop - he proved very bright, very cheeky, and very caring and considerate. He's an awesome boy.
At the age of four he was subsequently diagnosed with a very rare variant of an already rare disease called Focal Segmented Glolumerlosclerosis, which is a kidney disease, and prevents the kidney from filtering the blood properly.
Here's the rub: His heart cannot cope with high cholesterol/blood impurity in general, and his kidneys cannot do a particularly good job of filtering his blood. Put 2 + 2 together. Currently his cholesterol level is around 10, and this is whilst on a cocktail of drugs to deal with the condition (statins, anti-cholestrol agents, ABs).
His life expectancy is limited. I have been told that he will be considered a medical success if he lives to see his 20th birthday.
He is academically and creatively gifted, and has a 10ft-tall personality - he plays the drums, paints, draws, flirts like a gigolo - he is beautiful, thoughtful, and a wonderful human being. Every day with him is my greatest reward in the world.
I love him more than life, and he does not deserve the circumstances on his plate.