Re: Premier Mental Health Mutual Support Thread

402
Boy, I hate to keep posting in this thread.

Update: Dad is doing pretty good! He has had some up and downs, he developed a blood clot in his leg and is having to deal with that. He is doing chemo and is what you would expect. In a month he gets a scan to see how well the chemo has worked, we are feeling optimistic.

New Bad News
So, after me almost dying, mom with lung cancer, and dad with esophageal cancer, I just got word that my friend and bandmate has been diagnosed with ALS, which as you probably know is terminal. He was keeping his symptoms quiet but he let us know he has been losing function in his legs and other symptoms he didnt want to go into. He has 5 kids (ranging from elementary to college aged) and I just feel wrecked for him. He is a pretty private person, so even posting this here feels a little bad on my part. He loves music and being in our band meant a lot to him and I can tell it hurt him to tell us he is going to have to quit after the summer (or sooner depending on his health). I am a person that wants to solve problems, that's where my brain goes in crisis, but there is no real problem solving here. I want to do a fundraiser, but he is a private guy and I am not sure if he wants his business out there. I want to try to book a big show so he can play in front of a big crowd one last time, but I dont know how much time I have or if his body will make it, or if he even wants that. I am just very sad, and I love my friend, and I wish I could do more for him.
guitar in - weaklungband.bandcamp.com/

Re: Premier Mental Health Mutual Support Thread

403
Owen wrote: Tue Jun 10, 2025 4:40 pm Boy, I hate to keep posting in this thread.

Update: Dad is doing pretty good! He has had some up and downs, he developed a blood clot in his leg and is having to deal with that. He is doing chemo and is what you would expect. In a month he gets a scan to see how well the chemo has worked, we are feeling optimistic.

New Bad News
So, after me almost dying, mom with lung cancer, and dad with esophageal cancer, I just got word that my friend and bandmate has been diagnosed with ALS, which as you probably know is terminal. He was keeping his symptoms quiet but he let us know he has been losing function in his legs and other symptoms he didnt want to go into. He has 5 kids (ranging from elementary to college aged) and I just feel wrecked for him. He is a pretty private person, so even posting this here feels a little bad on my part. He loves music and being in our band meant a lot to him and I can tell it hurt him to tell us he is going to have to quit after the summer (or sooner depending on his health). I am a person that wants to solve problems, that's where my brain goes in crisis, but there is no real problem solving here. I want to do a fundraiser, but he is a private guy and I am not sure if he wants his business out there. I want to try to book a big show so he can play in front of a big crowd one last time, but I dont know how much time I have or if his body will make it, or if he even wants that. I am just very sad, and I love my friend, and I wish I could do more for him.
Oh my lord, dude. That is so, so fucking heavy. I am sincerely sorry for him, you, his family, friends. Fucking awful.

ALS. Fuck, man.

Re: Premier Mental Health Mutual Support Thread

404
Owen wrote: Tue Jun 10, 2025 4:40 pm Boy, I hate to keep posting in this thread.

Update: Dad is doing pretty good! He has had some up and downs, he developed a blood clot in his leg and is having to deal with that. He is doing chemo and is what you would expect. In a month he gets a scan to see how well the chemo has worked, we are feeling optimistic.

New Bad News
So, after me almost dying, mom with lung cancer, and dad with esophageal cancer, I just got word that my friend and bandmate has been diagnosed with ALS, which as you probably know is terminal. He was keeping his symptoms quiet but he let us know he has been losing function in his legs and other symptoms he didnt want to go into. He has 5 kids (ranging from elementary to college aged) and I just feel wrecked for him. He is a pretty private person, so even posting this here feels a little bad on my part. He loves music and being in our band meant a lot to him and I can tell it hurt him to tell us he is going to have to quit after the summer (or sooner depending on his health). I am a person that wants to solve problems, that's where my brain goes in crisis, but there is no real problem solving here. I want to do a fundraiser, but he is a private guy and I am not sure if he wants his business out there. I want to try to book a big show so he can play in front of a big crowd one last time, but I dont know how much time I have or if his body will make it, or if he even wants that. I am just very sad, and I love my friend, and I wish I could do more for him.
Fuck! I really don't know what to say
"OUR JOB IS TO PROTECT EMPATHY AT ALL COSTS, AND TO LIVE GROOVY LIVES"
- JOE STRUMMER TO JIM JARMUSCH

Re: Premier Mental Health Mutual Support Thread

408
Love to everyone on here, I hope everyone is doing okay.

I'm coming off anti-depressants at the moment, which is pretty gnarly. I've been on them since I had a horrible run of things in 2010, and they've undoubtedly kept me on this planet, but it's time to try life without them, I think. I tried to come off them about 3 years ago, which didn't go well at all. I'm hoping fate gives me a better run of things this time!

I'm getting a lot of brain zaps, dissociation and fluctuating mood. Hopefully it will calm down soon.

Re: Premier Mental Health Mutual Support Thread

409
strontiumtom wrote: Mon Jul 28, 2025 5:36 am Love to everyone on here, I hope everyone is doing okay.

I'm coming off anti-depressants at the moment, which is pretty gnarly. I've been on them since I had a horrible run of things in 2010, and they've undoubtedly kept me on this planet, but it's time to try life without them, I think. I tried to come off them about 3 years ago, which didn't go well at all. I'm hoping fate gives me a better run of things this time!

I'm getting a lot of brain zaps, dissociation and fluctuating mood. Hopefully it will calm down soon.
all my best to you. <3
the rutabega | forestlike | jwh

Re: Premier Mental Health Mutual Support Thread

410
strontiumtom wrote: Mon Jul 28, 2025 5:36 am Love to everyone on here, I hope everyone is doing okay.

I'm coming off anti-depressants at the moment, which is pretty gnarly. I've been on them since I had a horrible run of things in 2010, and they've undoubtedly kept me on this planet, but it's time to try life without them, I think. I tried to come off them about 3 years ago, which didn't go well at all. I'm hoping fate gives me a better run of things this time!

I'm getting a lot of brain zaps, dissociation and fluctuating mood. Hopefully it will calm down soon.
Are you tapering? Probably they're all diff. I tried cold turkey with Lexapro and it was suboptimal. Taper was fine. Wasn't on a high dose.

I started taking L-theanine for sleeping and stuff, and I like it so much that I'm taking it 100mg 2x/day now. It is supposed to do a bunch of good stuff--calming, promotes focus, plays well with caffeine--and I have to say it seems to work. I'm drinking 1/3 as much coffee, sleeping better, working on things in a focused way. It reminds me of a lite version of what it was like to start taking Lexapro when I really needed it, only no side effects, which is why I bring it up.

GOOD LUCK

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